Bill · H.R. 5178· House(119-HR-5178)
Sickle Cell Disease Comprehensive Care Act
- Introduced
- 9/8/2025
- Last activity
- 9/8/2025 — Referred to the House Committee on Energy and Commerce.
- Sponsored by
- Neal Dunn
- Cosponsors
- - 3 - 33
- Introduced
- In Committee
What this bill would do
The Sickle Cell Disease Comprehensive Care Act aims to amend the Social Security Act. It enables State Medicaid programs to provide comprehensive and coordinated care through health homes specifically for individuals with sickle cell disease. This change is scheduled to begin on January 1, 2026. The bill allows the Secretary to approve State plan amendments that focus primarily on these individuals. It also establishes specific requirements for dental and vision services within these health homes.
Yes· 3 of 21
Would Black Americans be better off under this?+10
Sickle cell disease disproportionately affects African Americans, who are the primary beneficiaries of this act.
Would households on low incomes be better off under this?+9
Specifically targets Medicaid-eligible individuals, greatly reducing out-of-pocket costs for care.
Does this make health care easier to get in general?+8
Expands access to coordinated care, dental, and vision services for people with sickle cell disease.
The opposite
No question was scored the opposite.
Who it would affect, and how
Potential Positive Impacts for People
-
Coordinated and Comprehensive Care: By allowing State Medicaid programs to use health homes, individuals with sickle cell disease can receive more coordinated care (Section 2, subsection (A)).
-
Expanded Medical Services: States that implement a sickle cell disease-focused plan must ensure that eligible individuals enrolled in the health home receive dental and vision services, regardless of existing state requirements (Section 2, subsection (B)).
-
Access to Best Practices: The Secretary is required to make best practices publicly available on the Centers for Medicare & Medicaid Services website to help design and implement these programs (Section 2, subsection (D)).
Potential Negative Impacts for People
- Reporting Requirements for States: States implementing these specialized plans must submit reports to the Secretary regarding the quality of care, access to care, and total expenditures for these individuals (Section 2, subsection (C)(i)).
Groups and Interests Ranking
Every group the model scored this bill for, from -10 to +10. Hover a score for the reason it gave.
- Demographic And Interest Groups
- Good For African Americans+10Good For Low Income Households+9Good For People With Disabilities+7Good For Children+6Good For Middle Aged+6Good For Seniors+6Good For Young Adults+6Good For Hispanic Americans+5Good For Men+5Good For Women+5Good For Asian Americans+3Good For Native Americans+3Good For White Americans+2
- Social Issues And Justice
- Improves Racial Equity+7Improves Disability Rights+5Improves Poverty Reduction+3
- Healthcare
- Improves Healthcare Access+8Increases Medicaid Funding+5
- Governance And Ideology
- Increase States Rights+3Improves Government Transparency+2Increases Federal Power+2
- 9/14/2026
- 1 Cosponsor added.
- 9/2/2026
- 1 Cosponsor added.
- 6/29/2026
- 1 Cosponsor added.
- 6/23/2026
- 1 Cosponsor added.
- 6/8/2026
- 2 Cosponsors added.
- 4/22/2026
- 1 Cosponsor added.
- 4/14/2026
- 2 Cosponsors added.
- 3/18/2026
- 1 Cosponsor added.
- 3/3/2026
- 1 Cosponsor added.
- 12/3/2025
- 1 Cosponsor added.
- 10/8/2025
- 1 Cosponsor added.
- 9/30/2025
- 3 Cosponsors added.
- 9/9/2025
- 1 Cosponsor added.
- 9/8/2025
- Referred to the House Committee on Energy and Commerce.
- 19 Cosponsors added.
- Introduced in House
2 bills Congress.gov lists as related to this one — companions in the other chamber, earlier versions, and bills this one absorbed or was folded into.
Alma AdamsDemocrat · North Carolina
Pete AguilarDemocrat · California
Gus BilirakisRepublican · Florida
Nikki BudzinskiDemocrat · Illinois
André CarsonDemocrat · Indiana
Earl CarterRepublican · Georgia
Salud CarbajalDemocrat · California
Troy CarterDemocrat · Louisiana
Herbert ConawayDemocrat · New Jersey
Danny DavisDemocrat · Illinois
Donald DavisDemocrat · North Carolina
Suzan DelBeneDemocrat · Washington
Cleo FieldsDemocrat · Louisiana
Valerie FousheeDemocrat · North Carolina
Shomari FiguresDemocrat · Alabama
Laura FriedmanDemocrat · California
Al GreenDemocrat · Texas
Josh GottheimerDemocrat · New Jersey
Glenn IveyDemocrat · Maryland
Henry JohnsonDemocrat · Georgia
Pramila JayapalDemocrat · Washington
Jonathan JacksonDemocrat · Illinois
Julie JohnsonDemocrat · Texas
Gwen MooreDemocrat · Wisconsin
Seth MoultonDemocrat · Massachusetts
LaMonica McIverDemocrat · New Jersey
Sarah McBrideDemocrat · Delaware
Eleanor NortonDemocrat · District of Columbia
Stacey PlaskettDemocrat · Virgin Islands
Terri SewellDemocrat · Alabama
Darren SotoDemocrat · Florida
Bennie ThompsonDemocrat · Mississippi
Rashida TlaibDemocrat · Michigan
Shri ThanedarDemocrat · Michigan
Eugene VindmanDemocrat · Virginia
Joe WilsonRepublican · South Carolina