Bill · S. 721· Senate(119-S-721)
Sickle Cell Disease Comprehensive Care Act
- Introduced
- 2/25/2025
- Last activity
- 2/25/2025 — Read twice and referred to the Committee on Finance.
- Sponsored by
- Cory Booker
- Cosponsors
- - 1 - 2
- Introduced
- In Committee
What this bill would do
This bill, known as the "Sickle Cell Disease Comprehensive Care Act," aims to amend title XIX of the Social Security Act. It seeks to establish a demonstration project to improve outpatient clinical care for people living with sickle cell disease. The legislation allows States to implement plan amendments designed to provide health home services specifically for these individuals starting January 1, 2026. It includes specific requirements for dental and vision services for those enrolled in these health homes. Additionally, it mandates reporting on care quality, access, and expenditures.
Yes· 3 of 7
Does this make health care easier to get in general?+7
The bill improves healthcare access by establishing a demonstration project for specialized outpatient clinical care and mandatory dental and vision services for people with sickle cell disease.
Would Black Americans be better off under this?+6
The bill provides specialized care for sickle cell disease, a condition that disproportionately affects Black Americans.
Would households on low incomes be better off under this?+5
The bill enhances Medicaid services, which primarily serves low-income populations.
The opposite
No question was scored the opposite.
Who it would affect, and how
Potential Positive Impacts for People
-
Enhanced Care Services: States can create plan amendments designed to provide health home services primarily to eligible individuals with sickle cell disease (Section 2, subsection (c)(5)(A)).
-
Mandatory Dental and Vision Care: For states with these specific plan amendments, the law ensures that eligible individuals receive dental and vision services, regardless of existing state requirements (Section 2, subsection (c)(5)(B)).
-
Access to Best Practices: The Secretary is required to make best practices for designing and implementing these health home services available on the Centers for Medicare & Medicaid Services website by June 30, 2026 (Section 2, subsection (c)(5)(D)).
Potential Negative Impacts for People
- Reporting Requirements: States must submit reports to the Secretary after the first 8 fiscal quarters covering healthcare quality, access, and total expenditures, which imposes administrative obligations (Section 2, subsection (c)(5)(C)(i)).
Groups and Interests Ranking
Every group the model scored this bill for, from -10 to +10. Hover a score for the reason it gave.
- Demographic And Interest Groups
- Good For African Americans+6Good For Low Income Households+5Good For People With Disabilities+5
- Healthcare
- Improves Healthcare Access+7Increases Medicaid Funding+5
- Social Issues And Justice
- Improves Racial Equity+5
- Governance And Ideology
- Improves Government Transparency+3
- 5/6/2025
- 2 Cosponsors added.
- 2/25/2025
- Read twice and referred to the Committee on Finance.
- 1 Cosponsor added.
- Introduced in Senate
2 bills Congress.gov lists as related to this one — companions in the other chamber, earlier versions, and bills this one absorbed or was folded into.
Bill CassidyRepublican · Louisiana
Christopher CoonsDemocrat · Delaware
Tim ScottRepublican · South Carolina