Bill · H.R. 4709· House(119-HR-4709)
Newborn Screening Saves Lives Reauthorization Act of 2025
- Introduced
- 7/23/2025
- Last activity
- 9/10/2025 — Forwarded by Subcommittee to Full Committee by Voice Vote.
- Sponsored by
- Kelly Morrison
- Cosponsors
- - 4 - 3
- Introduced
- In Committee
What this bill would do
The Newborn Screening Saves Lives Reauthorization Act of 2025 aims to amend the Public Health Service Act to reauthorize various programs regarding genetic diseases. It updates educational programs for families to cover screening, counseling, and long-term care. The bill also directs the Advisory Committee to publish consumer-friendly materials regarding screening processes and genetic testing. Additionally, it enhances surveillance activities by standardizing data collection and promoting data sharing between programs. It modifies the Hunter Kelly Research Program and increases authorization of appropriations through 2030. Finally, it addresses research involving nonidentified newborn dried blood spots.
Yes· 3 of 6
Would children be better off under this?+8
The bill improves newborn screening, counseling, and follow-up care which are critical for the health of infants and children.
Does this put more money into scientific research?+6
The bill significantly increases the authorization of appropriations for newborn screening programs and research through 2030.
Does this make health care easier to get in general?+5
The bill enhances healthcare connectivity by promoting data sharing between state programs and connecting families with long-term care services.
The opposite
No question was scored the opposite.
Who it would affect, and how
Potential Positive Impacts for People
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Improved Education for Families: The bill directs the development of educational programs for parents, families, and support groups regarding counseling, testing, follow-up, and long-term care (Section 2(a)).
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Patient Re-engagement: The updates to the Public Health Service Act include re-engaging patients who have not received recommended follow-up services and supports (Section 2(a)).
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Increased Transparency: The Advisory Committee will be required to develop and publish consumer-friendly materials on a public website regarding the screening panel nomination process and technical assistance (Section 3).
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Clinical Guidance: The bill adds guidance regarding the appropriate and recommended use of safe and effective genetic testing for healthcare professionals (Section 3).
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Enhanced Disease Detection: The bill includes provisions for performance evaluation services to improve disease detection through better tools, resources, and infrastructure (Section 5).
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Better Data Tracking: The bill standardizes data collection through electronic health records to provide real-time tracking from initial screening through long-term care (Section 5).
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Service Connectivity: By promoting data sharing between State newborn screening programs and State-based birth defects and developmental disabilities surveillance programs, families may be better connected with services (Section 5).
Potential Negative Impacts for People
- No negative impacts or burdens are explicitly stated in the provided text.
Groups and Interests Ranking
Every group the model scored this bill for, from -10 to +10. Hover a score for the reason it gave.
- Demographic And Interest Groups
- Good For Children+8Good For People With Disabilities+4Good For Low Income Households+3
- Education And Technology
- Increases Scientific Research Funding+6
- Healthcare
- Improves Healthcare Access+5
- Social Issues And Justice
- Improves Poverty Reduction+2
- 8/31/2026
- 1 Cosponsor added.
- 4/14/2026
- 1 Cosponsor added.
- 1/21/2026
- 1 Cosponsor added.
- 9/10/2025
- Referred to the Subcommittee on Health.
- Subcommittee Consideration and Mark-up Session Held
- Forwarded by Subcommittee to Full Committee by Voice Vote.
- 8/15/2025
- 1 Cosponsor added.
- 7/23/2025
- Referred to the House Committee on Energy and Commerce.
- 3 Cosponsors added.
- Introduced in House
Jake AuchinclossDemocrat · Massachusetts
Nikki BudzinskiDemocrat · Illinois
Michael LawlerRepublican · New York
Nicholas LangworthyRepublican · New York
Michael SimpsonRepublican · Idaho
Greg StantonDemocrat · Arizona
Kim SchrierDemocrat · Washington