Bill · S.Res. 104· Senate(119-SRES-104)
A resolution designating February 27, 2025, as "Rare Disease Day".
- Introduced
- 2/27/2025
- Last activity
- 2/27/2025 — Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S1434; text: CR S1433)
- Sponsored by
- John Barrasso
- Cosponsors
- - 3 - 3
- Introduced
- Officially Recorded
- Adopted by the Senate
A Senate resolution is the Senate speaking for itself: stating a position, honouring someone, or setting its own rules. Adopting it is the whole process. Once the Senate agrees to it, it is officially the Senate's word; it is not a law, so the House and the President have no part in it.
What this bill would do
This resolution designates February 27, 2025, as "Rare Disease Day." The measure acknowledges that more than 30,000,000 individuals in the United States live with one of more than 10,000 known rare diseases or disorders. It highlights the importance of the Orphan Drug Act and the work of the FDA to accelerate treatment availability. The resolution also notes the challenges patients face regarding financing treatments and obtaining accurate diagnoses. Finally, it recognizes the need for improved awareness and research efforts.
Yes· 3 of 5
Would children be better off under this?+3
The resolution notes that children account for a significant portion of the rare disease population.
Would people with disabilities be better off under this?+3
The resolution emphasizes improving awareness, diagnosis, and treatment for those living with rare disorders.
Does this make health care easier to get in general?+3
The resolution highlights the importance of accelerating treatment availability and improving diagnosis for rare disease patients.
The opposite
No question was scored the opposite.
Who it would affect, and how
Potential Positive Impacts for People
-
Designation of Rare Disease Day: By designating February 27, 2025, as "Rare Disease Day," the Senate recognizes the importance of improving awareness (Section 2, Paragraph A).
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Focus on Diagnosis and Research: The resolution recognizes the importance of encouraging accurate and early diagnosis, as well as supporting national and global research efforts to develop effective treatments, diagnostics, and cures (Section 2, Paragraphs B and C).
Potential Negative Impacts for People
- No negative impacts are explicitly stated in the text.
Groups and Interests Ranking
Every group the model scored this bill for, from -10 to +10. Hover a score for the reason it gave.
- Demographic And Interest Groups
- Good For Children+3Good For People With Disabilities+3Good For Low Income Households+2
- Healthcare
- Improves Healthcare Access+3Increases Research Funding+2
- 2/27/2025
- Passed/agreed to in Senate: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent.
- Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S1434; text: CR S1433)
- 6 Cosponsors added.
- Introduced in Senate
One bill Congress.gov lists as related to this one — companions in the other chamber, earlier versions, and bills this one absorbed or was folded into.
Richard BlumenthalDemocrat · Connecticut
Cory BookerDemocrat · New Jersey
Amy KlobucharDemocrat · Minnesota
Roger MarshallRepublican · Kansas
Tim ScottRepublican · South Carolina
Roger WickerRepublican · Mississippi