Genomic Answers for Children’s Health Act of 2026

Coverage of Genetic Testing: Section 2(a) amends the Social Security Act to explicitly cover whole genome and whole exome sequencing under Medicaid as a first-tier test for children suspected of having a genetic disorder, rare disease, or health condition of unknown origin. This is a positive step because it helps families get critical diagnostic answers for sick children.

Separate Billing Protection: Section 2(b) ensures that payment for whole genome and whole exome sequencing is made separately and is not bundled as part of payment for any other medical assistance. This is beneficial because it prevents hospitals and providers from hiding the cost of these specific tests inside broader medical bills.

Public Awareness and Reporting: Section 2(c) requires the Department of Health and Human Services to conduct outreach to families and organizations, and to publish a public report on payment amounts, the number of children receiving the tests, and health outcomes. This holds officials accountable and keeps the public informed about how well the program is working.