DeOndra Dixon INCLUDE Project Act of 2025

Improved understanding of health and development: The program includes research on how trisomy 21 affects human development and health, which can help people understand the condition better (Section 2(b)(1)).

Better care across different ages: Research will include participants across their entire lifespan, which can help improve understanding and create new interventions (Section 2(b)(2)).

Expanded medical options: By increasing clinical trials, people with Down syndrome may have access to new biomedical and pharmacological interventions or therapies to help with daily living (Section 2(b)(3)).

Better diagnosis and treatment: Research into biological mechanisms and biomarkers aims to improve how conditions co-occurring with Down syndrome are diagnosed and treated (Section 2(b)(4) and Section 2(b)(5)).

Focus on specific health risks: The program targets research on causes and treatments for co-occurring conditions like Alzheimer's disease, related dementias, and autoimmunity (Section 2(b)(6)).

Improved quality of life: The project specifically includes research and training intended to improve the quality of life for individuals with Down syndrome and their families (Section 2(b)(7)).

Inclusion of patient voices: The Director of NIH is directed to consult with stakeholders and patient advocates to ensure the needs of individuals with Down syndrome are considered (Section 2(d)).