Bill · H.Res. 385· House(119-HRES-385)
Expressing support for the designation of May 2, 2025, as "NKH Awareness Day".
- Introduced
- 5/5/2025
- Last activity
- 5/5/2025 — Referred to the House Committee on Energy and Commerce.
- Sponsored by
- Eugene Vindman
- Cosponsors
- - 0 - 1
- Introduced
- In Committee
A House resolution is the House speaking for itself: stating a position, honouring someone, or setting its own rules. Adopting it is the whole process. Once the House agrees to it, it is officially the House's word; it is not a law, so the Senate and the President have no part in it.
What this bill would do
House Resolution 385 expresses support for designating May 2, 2025, as "NKH Awareness Day." The resolution defines nonketotic hyperglycinemia (NKH) as a rare genetic metabolic disorder where glycine builds up in the body. It notes that NKH affects about 1 in 76,000 people worldwide, with only about 500 diagnosed cases globally. The resolution highlights that Congress can help raise awareness in the public and medical communities. This increased awareness may lead to more research and more diagnoses.
Yes· 3 of 7
Would children be better off under this?+3
NKH primarily affects children, and increased awareness can lead to earlier diagnosis and better outcomes.
Would people with disabilities be better off under this?+3
Directly supports awareness for a rare genetic disorder that causes severe disability.
Does this make health care easier to get in general?+2
Increased awareness of NKH may lead to more accurate and timely diagnoses.
The opposite
No question was scored the opposite.
Who it would affect, and how
Potential Positive Impacts for People
-
Increased Awareness and Education: The resolution recognizes the importance of improving education and raising awareness around NKH. This could help the public and medical community better understand the disorder.
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Improved Medical Outcomes: The text states that increased awareness may result in increased research, more participation in patient registries, and more diagnoses of NKH cases.
Groups and Interests Ranking
Every group the model scored this bill for, from -10 to +10. Hover a score for the reason it gave.
- Demographic And Interest Groups
- Good For Children+3Good For People With Disabilities+3Good For Young Adults+1
- Healthcare
- Improves Healthcare Access+2Increases Research Funding+2
- Education And Technology
- Increases Scientific Research Funding+1
- Social Issues And Justice
- Improves Disability Rights+1
- 5/5/2025
- Submitted in House
- Referred to the House Committee on Energy and Commerce.
- 1 Cosponsor added.
Ben ClineRepublican · Virginia