CONGRESS FOR VOTERS

RepublicanBill · H.Res. 1133· House(119-HRES-1133)

Designating November 7 of each year as ''Shwachman Diamond Syndrome Awareness Day''.

Rep. Kean
Age: 58 years
New Jersey
Introduced
3/24/2026
Last activity
3/24/2026 — Referred to the House Committee on Energy and Commerce.
Sponsored by
Thomas Kean
Cosponsors
Republican - 0Democrat - 1
Health
  1. Introduced
  2. In Committee

A House resolution is the House speaking for itself: stating a position, honouring someone, or setting its own rules. Adopting it is the whole process. Once the House agrees to it, it is officially the House's word; it is not a law, so the Senate and the President have no part in it.

What this bill would do

This resolution proposes designating November 7 of each year as "Shwachman Diamond Syndrome Awareness Day." Shwachman-Diamond syndrome is a rare genetic disorder that impacts bone marrow, the pancreas, and the skeleton. The disorder can lead to severe complications such as liver dysfunction, developmental delays, and increased risks of blood disorders. Because the condition is rare, it is often underdiagnosed and lacks widespread public knowledge. This designation aims to increase awareness of the disorder's impact on Americans. Additionally, the resolution seeks to promote further research into effective treatments for the disease.

Yes

  • Would children be better off under this?+3

    The bill aims to increase awareness and research for a disease that causes significant developmental and health issues in infants and children.

  • Would people with disabilities be better off under this?+3

    Increasing awareness and research for Shwachman-Diamond syndrome can improve the management and quality of life for those living with this genetic disorder.

  • Does this put more money into medical research?+3

    The resolution explicitly seeks to promote initiatives at various levels of government to enhance research into treating Shwachman-Diamond syndrome.

The opposite

No question was scored the opposite.