Bill · H.Res. 1060· House(119-HRES-1060)

Expressing support for the designation of April 5, 2026, as "Barth Syndrome Awareness Day".

Age: 77 years

New York

Introduced: 2/11/2026
Last activity: 2/11/2026 — Referred to the House Committee on Energy and Commerce.
Sponsored by: Paul Tonko
Cosponsors: - 7 - 4

Health

Introduced
In Committee

A House resolution is the House speaking for itself: stating a position, honouring someone, or setting its own rules. Adopting it is the whole process. Once the House agrees to it, it is officially the House's word; it is not a law, so the Senate and the President have no part in it.

What this bill would do

This resolution expresses support for designating April 5, 2026, as "Barth Syndrome Awareness Day." The bill highlights that Barth syndrome is a rare, life-threatening genetic disorder caused by a mutation in the tafazzin gene. It notes that the disorder affects multiple body systems and can lead to death in early childhood. The resolution emphasizes the need for increased research, better diagnosis, and new treatments. Finally, it seeks to recognize the importance of improving awareness and advancing medical developments for this condition.

Yes· 3 of 6

Would children be better off under this?+5
The resolution focuses on a life-threatening disorder that primarily causes death in early childhood.
Would men be better off under this?+4
The resolution notes that Barth syndrome primarily affects males.
Would people with disabilities be better off under this?+4
The bill advocates for better diagnostic and treatment pathways for a rare genetic disorder.